The Big Journey

Published on 31 August 2024 at 10:35

The 'travel checklist' … ticking all the boxes!

 

  • Maximum cycles of chemotherapy βœ”οΈ

Journey duration of around 6 months

 

  • Unforeseen opportunity to have surgery βœ”οΈ

Nice surprise alternative 'diversion' to the 'road closure'

 

  • Little surgery before the Big surgery βœ”οΈ

Portal & hepatic vein embolisation

 

  • The BIG surgery βœ”οΈ

Right hepatectomy, cholecystectomy and extended lymphadenectomy

 

  • Post surgery recovery βœ”οΈ

Long bumpy road with moments of deep darkness

 

All boxes ticked, journey complete - arrived at the destination! βœ”οΈβœ”οΈβœ”οΈ

 

Or so I thought.... until... those annoying scans got in the way!!!

 

'Recurrent cholangiocarcinoma'!!!

 

This can't be possible!!! Arghhhhhhhhh ..... but....but... I 'threw the kitchen sink at it', it does not make any sense, it was all good post surgery and I feel well??!!

 

Right, I need to go through my list, I must have missed something!

 

  • Conventional medical treatments βœ”οΈ
  • Functional medicine in integrative oncology with a 'suitcase' filled with tests and supplements βœ”οΈ
  • Strict diet: no sugar, eat broccoli until my eyes turn green, be afraid of eating the wrong things, only organic will do (even if it is all wrapped in plastic), no fun βœ”οΈ
  • Meditations, affirmations, visualisations, rituals βœ”οΈ
  • Complimentary treatments βœ”οΈ
  • Read inspirational books βœ”οΈ
  • Exercise βœ”οΈ
  • Spend time in nature βœ”οΈ

 

No... all double checked. Did not miss anything! Or did I???

 

Was I so consumed with staying alive that I forgot how to live? So focused on healing that I lost myself along the way? Was I so afraid of EVERYTHING that I forgot how to have fun?

 

Now what??? I am at a cross roads... Where do I turn?

 

Ok the medical team are on it and much to my disgust we can re-challenge with the old chemo Gemcitabine and Cisplatin. Oh wait... and there is a new kid on the block: Immunotherapy Durvalumab! Ok now we are talking, time to bring in the big guys, we mean business!

 

But... what else can I do???

 

Well, as the wise Albert Einstein once said:

Insanity is doing the same thing over and over again and expecting different results' 

So I must change course, I need to change the direction of travel!

 

And so I 'packed my bags' once again and embarked on another journey... 

 

Sara πŸ’™

 

'You may see me struggle... but you'll never see me quit!

unknown

 

 

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Comments

JCB
4 months ago

Dear Sara

There is one thing i am certain of, we have these bumps in the road - crossroads, roundabouts, are they familiar to us like at home or are we in a foreign country negotiatingπŸ€·β€β™‚οΈ you are on a foreign learning experience, a pretty different one than you’d like, but your are strong and your PMA is a big thing. Keep driving on this trip and I’ll see you at the destination. πŸ™Œ