When living under the 'C canopy', in a tent so fragile that sometimes can't keep the rain from the storms from infiltrating through.... can you ever switch off the 'cancer button'?
Even with the most positive of minds, at times the mental exercise, the mental fatigue actual felt like being in a tug of war... Fear vs Faith!
Despite maintaining a natural positive mental attitude most of the time, how can I ever switch off from the fact that the cholangio also still resides in my tent?
When I feel well, I am on top of the world! The amount of times I've been told 'Oooh! You look really well!' I guess courtesy of still ongoing, poor quality and old fashioned tv campaigns and movies, people expect those dealing with cancer to look unwell and struggle all the time. And whilst this rollercoaster often feels like you are inside a washing machine tumbling around at the fastest cycle, other times you may not even be aware of it!
I often wish I could simply forget all about it and just focus and get on with living my best life... but... along come crawling those pesky scans... follow up appointments, weekly treatments and side effects!
Is it truly possible and realistic to switch off the button?
I wish I could say a big positive 'YES, of course we can!' But that would not be true in my case, I don't think it is possible to completly switch off the button... but... the great news is... it is possible to hit the snooze button! ⏰️🙌 as often and for as long as it is required! Good job I've always liked to hit the snooze button 😅
This button has various settings:
• Continually cultivate and nourish social connections with family and friends 🦋
• Self-care is health care! Treating my body with the respect it deserves by checking in and meeting it where it's at every day. From having complete rest days to being active; eating well; having a good soak in the bath to help ease off aches and pains... 🛀
• Attend to the mind by checking in and honouring feelings. This can take place whilst contemplating and grounding in nature or just about anywhere, often with a notepad and pencil in hand... 📝
• Attend to the spirit... the force that propels me forward every day! Calming music, meditations, time in nature... 🧘🏻♀️
• Learn something new. It could be simply trying a new recipe or an online course... 🤓
• Laugh as much and as often as I can! Laugh at myself being clumsy and dealing with brain fog, watch a comedy, friends' banter... 🤣
• Future goals - have something to look forward to, from a nice meal out to a trip away... 🧳
• Self-discovery through various holistic practices such as astrology and numerology ✨️
• Creativity - Hello Finding the Middle Road 🪷 🦅
I have to admit it... not in a million years I thought I would start writting a blog, let alone set up and manage a website and social media accounts! Me writting? No way! And yet here I am... somehow between a chemotherapy session and being wide awake in the night pumped by steroids a blog was born 😂
Allowing my creativity to run freely, encouraging it to thrive after years of being pushed to the corner because 'that's life!' I am now reconnecting with my authentic self and loving so much seeing the creative child within me grow and florish 🌱💧
• Play and be free like a child. Learn from my gorgeous little nephews to be free and get lost in the adventure of life... play and laugh in the rain, make crafts out of anything, throw pebbles into the sea... 🎈🧸
So... whilst I have not found the 'off button' just yet, I most certainly will continue thriving and enjoying having all these snoozes ⏰️ 🤭
Sara 💙
The trouble with real life is, there is no reset button.
Donald E. Westlake
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