Reporting from Regorafenib lands

I wont even try to embelish the start of this writing... there is only one word to describe these lands....Rubbish!

I find myself thinking that Gem-Cis was a walk in the park in comparison. Ok...ok... an adventure park perhaps with a few rides. I guess it is easy to forget that the very first session nearly put me in hospital and the bad days were really horrible also, but at least I had some days feeling 'pumped' 💪

But this??? So far this is awful!!! 11 days in and new side effects keep showing up. I go to sleep and wake up with something new, no word of a lie, literally wake up and face a new rollercoaster.

The worst part? I am not even taking a full dose yet, that will start next week 😣

Regorafenib is a cancer growth blocker. It works by stopping signals that tell cancer cells to grow and cancer cells forming new blood vessels.

The Common side effects are:

• Increased risk of getting an infection

• Breathlessness and looking pale

• Bruising, bleeding gums or nosebleeds

• Tiredness and weakness (fatigue) ✅️

• Soreness, redness and peeling on palms and soles of feet  ✅️

• Loss of appetite and weight loss  ✅️

• Diarrhoea or constipation  ✅️

• Voice changes  ✅️

• High blood pressure

• Mouth sores and ulcers ✅️

• Skin problems such as a skin rash, dry skin and itching ✅️

• Feeling or being sick  ✅️

• pain in joints, arms and legs, or back  ✅️

• High temperature (fever)

• Changes to how your liver works

I won't even bother listing the more severe ones, I don't really want to think about those to be honest.

Is there quality of life in these lands? I keep asking myself that... and I really do not know at this stage. I think I need to stick around a bit longer and hope the scenery will change and bring me some sense of rejuvenation.

Right now, the only way of staying on track is by setting up camp and waiting for the storm to pass.

I am managing the side effects the best I can and having lots of rest. Unfortunately I had to cancel quite a few things, from dental appointments to seeing family and friends. 

A lot of the things that add zest to my life experience had to be put on hold for now 😢

It really feels like a rollercoaster, for a few brief moments I feel well and then... bang into the abyss I go...

I guess for the time being I will buckle up, hold on tight and keep the faith that I will reach nicer lands soon.

Sara 💙

Don't give up when dark times come. The more storms you face in life, the stronger you'll be.

Hold on. Your greater is coming.

Germany Kent